This morning I saw a story about a little boy who drowned but regained consciousness after being in an induced coma.
The story brought back memories of our son who we did not know if he would make it after brain surgery at 17 mos. I heard the story of what these parents went through. And I remember. Our little boy was seemingly normal in every way. He is the third child and the other two were late walkers, so when Chris wasn't walking, but moved fast over the floor with the what was called "Vietnamese crawl" pulling with his arms and pushing with his feet, we weren't too concerned. Our oldest did not crawl until right before he walked at 14 mos. But as a few months went on I noticed when he pulled himself up on the coffee table, he groaned. Then we noticed his legs did not seem to gain muscle.
I took him to the doctor for his regular appointment. He asked me if Chris was usually this lethargic. I looked at him and said he is very active at home. He was feeding himself, doing first puzzles, etc. He told me to take off his clothes. I stood there frozen and looked at my baby, the realization that something could be wrong. The doctor came back by the door and repeated take off his clothes. Then our nightmare started.
We had to wait 2 weeks for the blood tests results to come in. They were for every debilitating disease that children could have. When they came back the doctor called and said they all were negative, but get him to Children's Hospital right now. Take him to the neurological department I will meet you there.
I will write more in my next post. It is very emotional for me.
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